Evangelina's Excellent Decade: An Update on a Case of the Bubble Baby Disease and a Gene Therapy

California backed the work with about $40 million

Evangelina surfing — Family photo

Evangelina’s story is one of joy. But when she was born 10 years ago, it was a much different matter. 

Six weeks after her birth on Aug. 28, 2012, she was diagnosed with the “bubble baby” disease, a rare genetic immune deficiency (ADA-SCID) that threatened her life. Her twin sister, Annabella, was not afflicted. 

As the gi…