'All Not Well in Gene Therapy World' -- Denial of Coverage, Delays and Complications

Implications for $12 billion California program and its mandate for affordability

It is one thing to talk abstractly about the astronomical costs of revolutionary gene therapies. It is another to dive into the personal battles with insurance companies and see the physical and emotional pain of the patients and their families.  

“My heart sank,” said Amanda Reed. “It was horrible. I thought, ‘Am I going to lose my boys?”

Bloomberg News